Dex was an absolute angel during the car ride down to Houston on Saturday which was incredibly shocking given our car ride 2 months ago when we came down to meet the surgeon! He only slept about 30 minutes in total but just hung out happily the rest of the time. What a difference 2 months make!
We knew we had to be at the hospital for pre-op today but we were never informed as to when. I had been emailing and calling our nurse last week and never got a response. So, we decided to call the hospital first thing this morning. I called a different nurses line and she said "you were supposed to be here at 8 am". It was 8:15 am and we were an hour away from the hospital. Frustrating to say the least. Luckily, they didn't seem too bothered by it and we arrived at the hospital at 9:30 am.
It has been an uneventful day really. When we checked in, they sent us straight to pathology where they were to do some blood tests. This poor baby. She had to stick him in both arms to get the blood she needed and he was NOT happy. It all seemed to take a very, very long time. We then went back to the main floor and waited in a room for the next 3 hours while people came in and out. Nurses, guest services, social worker, heart tissue donation person (seriously) and more. We were pretty hopeful that we would be able to stay in a hotel tonight and bring him back early in the morning for surgery but they ended up admitting us. Since about 3 pm, we've been in our own room (with a metal cage-like crib). They have also decided that they will put in an IV tonight to give him fluids throughout the night but the nurses already tried once to get it in and couldn't. Lots of screaming ensued and I think my own blood pressure went through the roof. He can have breast milk up until 3 am but nothing after that. Definitely planning to set an alarm right at that time to wait until the longest possible second to feed him before surgery.
All in all though, Dex has been an absolute dream. He hasn't fussed much and has just been an alert, curious baby. He's been smiling up a storm and taking it all in. We just put him down for the night and are just praying he (and us) get a decent night sleep. I know Mark and I will be restless.
Surgery is at 7:30 am. They plan to get started with everything at 6:30 am. Surgery should be between 4-6 hours and they will give us updates about every hour to hour and a half. Once out of surgery, he will be in ICU for a couple of days until he's moved back to this floor (the floor we are on now) to a private room where we can stay with him again around the clock.
I know there are so many people praying for him and us. We are so grateful for that. I have loved getting all of your texts and voicemails and it settles my heart a bit to know that all of the people we love so much are supporting us through this. All we can do now is pray. Pray that all goes smoothly tomorrow and that this time tomorrow night, Dex will have a healthy, healed heart.
Love to everyone.
Happy baby in the car!
More happy baby in the car!
Sleepy baby in the car! (you can tell I'm excited about all of the recent car success) :)
Waiting to have blood drawn
This is how all of his naps were today
Getting his EKG done
Sweet, happy baby
The cage/crib
Big, BIG smiles
The nurses trying to get an IV in. Unsuccessfully.
Playing with his favorite hippo.
Always playing with his feet these days.
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